Wednesday, 27 February 2019

What's been going on

I haven't posted in quite a while on here as between Patricia and myself, we've had a multitude of health issues.

I've just had my second round of surgery since having her. First surgery was to remove my gallbladder after I developed gallstones just after Patricia was born. This second surgery was to repair a moderately large hernia that developed after my last surgery - helped along by the fact that my abdominal muscles were quite separated from pregnancy. I'm hoping this will be it for me (fingers crossed).

Patricia is the sweetest little girl but she does have a number of developmental delays. She is now 14 months old and is still learning how to sit. She doesn't talk, though she makes plenty of noise. She does her own version of crawling which is so cute and loves to roly poly all over the place. She also has almost no interest in grabbing onto things. She'll put her hands in her mouth, but nothing else. She sometimes puts her hands in her food. Speaking of food, she loves her food. But it has to be relatively soft as it tends to get stuck on her high arch palate. We haven't found anything that she doesn't like to eat. She has issues with both her hearing and vision. She'll be getting grommets in a few weeks and they're still trying to find a reason for her vision delay.
She has three therapists. A neuro-developmental therapist (NDT), speech-language therapist (SLT)and a Resource Teacher Vision (RTV). They're all fantastic at helping with her development.

I'm thinking that I might start a series (when I have time amongst all our appointments) detailing our journey from pregnancy onwards. It's not being the easiest of journeys but it'll be good to document it all :) 

The two of us last night
In the next month we (so far) have the following appointments:
Me - nurse to check surgical wound, nurse to take stitches out and follow up appointment with surgeon.
Patricia - Paediatrician, grommets surgery (under general anaesthetic), testing her optic nerves and retinas (also under general), visit from her NDT and SLT. I will also have to organise her 15 month immunisations to happen somewhere in amongst this all. 

Wish us luck!